Wednesday, September 5, 2012

For World CP day


On How I got Here
By Melissa Taylor

Ideally, every person would accept their challenges in life and find a way around these.  A strict schedule of grief and acceptance, including the how-to manual would be included in a kit, and everyone with challenges and disabilities would know that “Everyone feels like this!” and “Everyone has challenges!” and magically, everything would be ok.
      However, no typical chart exists. Or if one exists, I have never been on the chart. Although I  draw inspiration from article, persons I meet with challenges, and segments on television, nothing ever resonates  as away of being.
       Every person owns their journey in life with disability. Some may visualize it as a mountain, others deep valley, others still a swimming in a crashing ocean. A Segway, a walker, a wheelchair, or crutches may be used to transport him or herself through the terrain, and the representation of acceptance or success different for each individual. For some it may be walking independently, for others, adapted sports. Until about age 23, I was gung-ho about life; an avid student, I worked part time, and I fulfilled every commitment ever promised.  I never thought I’d feel “stoppable.” As I got older, I had less energy for positivity. I didn’t walk by myself as much, I’d endured a frustrating internship at an inner-city school, a successful internship at a school in town. My heart makes up for whatever I cannot do.  I realize now that I compensated with soul for not only cerebral palsy, but my organizational deficits caused by learning disabilities. This compensation takes energy, and  suddenly, my reserves depleted. Usually a go-to for positivity, happiness, and love for my students, fatigue paralyzed me. After deciding to end student teaching, I was lost. Ever since, well-meaning acquaintances have asked me “What do you want to do with your life?” I am  First, what I wanted in life was for people to stop asking me questions. I focused on getting a ride to work, and staying positive, which took energy. Finding my path in life required stamina not available to me. Trying harder with teaching proved impossible, and returning to school not feasible. These factors caused me to give up on myself, the saddest part of my journey. I stopped dreaming when discovering  neurological and personal aspects caused me to cross out opportunities, feeling infinitely disabled. All I thought of were impossibilities.  I’ve always known that my path to success would be defined differently than a non-disabled person. However, I refuse to have lower expectations for myself, as  I know myself best. With with the right job, self-support  is a reality. This right job will not appear as a position as a neurosurgeon,  a mathematician, but a job that holds passion and promise. Cashiering is respectable, but there’s a “happiness  ceiling”,; a limit to which I can be happy having other interests, expending much energy for little money, at a location I have been working since high school.  No longer can I look on the bright side to a job with no promise of professional growth. I never intended to be tethered indefinitely to the income limits of social security or the intellectual limits of cashiering. I came to the realization that as hard as it s that doctors and psychologists box me in with a label, it is even more disturbing when I box myself in with the labels assigned to me.

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