A year later, I don't know if I could be the spokesperson for where I live.
But I know that I speak up more for myself
A year later, I still don't know my life's path
But I am more accepting of that now
A year later, I haven't changed at all in some ways
Because what I needed to change the most was how I treated myself
A year later, I still give to others
Even more than ever, still as automatic as my huge grin
A year later, I realize it's not about the place or situation or life being perfect
Or even learning lessons from imperfections
Sometimes life is hard, and that's just because it is
Not because I didn't try
or because I need to learn a life lesson
But because sometimes life stinks
And the only way to react is to hold your nose
and keep going
Cerebral Palsy. Mental Health. Writing. Advocacy. Authenticity
Saturday, October 26, 2013
Wednesday, October 2, 2013
For World CP Day
I have a wish list:
For everyone with CP to be able to live, think of a goal and pursue it without having to overcome additional obstacles, and without having to prove themselves. A question should be "How can I help you achieve this goal?" not "How are you going to do that?"
I wish that the medical community didn't give up after a certain age, because cerebral palsy doesn't disappear. Everyone deserves to perform at their maximum and have the right to determine that for themselves, not relying on a doctor or an insurance company.
I wish that people with CP that need assistance did not need to be dirt poor in order to be eligible for assistance or stay dirt poor to remain eligible
I wish that cerebral palsy did not mean to some I lived a completely different existence and cannot relate to others.
I wish to ease the burden of always being positive
I wish for others with CP to be able to tell their story; the good, bad, funny, sad, angry, embarrassing,
to eliminate shame.
I wish for better public transit options
I wish for more of everything; more awareness, more research, more communication, more conversation about what needs to happen, and more hope and faith from society that people with CP will lead a full, self-determined life.
For everyone with CP to be able to live, think of a goal and pursue it without having to overcome additional obstacles, and without having to prove themselves. A question should be "How can I help you achieve this goal?" not "How are you going to do that?"
I wish that the medical community didn't give up after a certain age, because cerebral palsy doesn't disappear. Everyone deserves to perform at their maximum and have the right to determine that for themselves, not relying on a doctor or an insurance company.
I wish that people with CP that need assistance did not need to be dirt poor in order to be eligible for assistance or stay dirt poor to remain eligible
I wish that cerebral palsy did not mean to some I lived a completely different existence and cannot relate to others.
I wish to ease the burden of always being positive
I wish for others with CP to be able to tell their story; the good, bad, funny, sad, angry, embarrassing,
to eliminate shame.
I wish for better public transit options
I wish for more of everything; more awareness, more research, more communication, more conversation about what needs to happen, and more hope and faith from society that people with CP will lead a full, self-determined life.
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